Vascular Birthmarks FoundationThe Physician E-Learning Center

Bibliography (A Foundation in Vascular Anomalies – Neurology)

Course 01: Orientation

Mulliken, J. B., & Glowacki, J. (1982). Classification of pediatric vascular lesions. Plastic and Reconstructive Surgery, 70(1), 120.

Mulliken, J. B., & Glowacki, J. (1982). Hemangiomas and vascular malformations in infants and children: a classification based on endothelial characteristics. Plastic and Reconstructive Surgery, 69(3), 412-420.

Wassef, M., Blei, F., Adams, D., Alomari, A., Baselga, E., Berenstein, A., … & Lord, D. J. (2015). Vascular anomalies classification: Recommendations from the International Society for the Study of Vascular Anomalies. Pediatrics, 136(1), e203-e214.

Course 10: Diagnosis and Management of Sturge-Weber Syndrome

Bachur, C.D., Comi, A.M. (2013) Sturge-Weber syndrome. Current Treatment Options in Neurology. 15(5):607-617. doi:10.1007/s11940-013-0253-6.

Bourgeois, M., Crimmins, D. W., Oliveira, R. S., Arzimanoglou, A., Garnett, M., Roujeau, T., . . . Sainte-Rose, C. (2007). Surgical treatment of epilepsy in Sturge–Weber syndrome in children. Journal of Neurosurgery: Pediatrics, 106(1), 20-28.

Comi, A. M. (2015). Sturge–Weber syndrome. Neurocutaneous Syndromes Handbook of Clinical Neurology, 157-168.

Comi, A. M., Fischer, R., & Kossoff, E. H. (2003). Encephalofacial angiomatosis: Sparing the occipital lobe with and without facial nevus: On the spectrum of Sturge-Weber syndrome variants? Journal of Child Neurology, 18(1), 35-38.

Gao, L., Phan, S., Nadora, D. M., Chernova, M., Sun, V., Preciado, S. M., . . . Tan, W. (2014). Topical rapamycin systematically suppresses the early stages of pulsed dye laser-induced angiogenesis pathways. Lasers Surg. Med. Lasers in Surgery and Medicine, 46(9), 679-688.

Hatfield, L. A., & Kossoff, E. H. (2005). Comorbidity of epilepsy and headache in patients with Sturge-Weber syndrome. Journal of Child Neurology, 20(8), 678-682.

Hu, J., Yu, Y., Juhasz, C., Kou, Z., Xuan, Y., Latif, Z., . . . Haacke, E. M. (2008). MR susceptibility weighted imaging (SWI) complements conventional contrast enhanced T1 weighted MRI in characterizing brain abnormalities of Sturge-Weber Syndrome. Journal of Magnetic Resonance Imaging, 28(2), 300-307.

Klapper, J. (1994). Headache in Sturge-Weber syndrome. Headache: The Journal of Head and Face Pain, 34(9), 521-522

Kossoff, E. H., Borsage, J. L., & Comi, A. M. (2010). A pilot study of the modified Atkins diet for Sturge–Weber syndrome. Epilepsy Research, 92(2-3), 240-243.

Lance, E. I., Sreenivasan, A. K., Zabel, T. A., Kossoff, E. H., & Comi, A. M. (2012). Aspirin use in Sturge-Weber syndrome: Side effects and clinical outcomes. Journal of Child Neurology, 28(2), 213-218.

Nomura, S., Shimakawa, S., Fukui, M., Tanabe, T., & Tamai, H. (2014). Lamotrigine for intractable migraine-like headaches in Sturge–Weber syndrome. Brain and Development, 36(5), 399-401.

Course 16: Psychosocial Implications in Patients with Vascular Anomalies

Brenner, A. (1984). Helping children cope with stress. Jossey-Bass.

Brogdon, J. (1999). Psychosocial impact of congenital vascular lesions. In M. Waner & J. Suen (Eds.), Hemangiomas and vascular malformations of the head and neck, pp. 217-232). New York: Wiley-Liss.

Cardena, E., Koopman, C., Classen, C., Waelde, L. C. & Spiegel, D. (2000). Psychometric properties of the Stanford Acute Stress Reaction Questionnaire (SASRQ): A valid and reliable measure of acute stress. Journal of Traumatic Stress, 13(4), 719-734.

Horowitz, M., Wilner, M., & Alvarez, W. (1979). Impact of event scale: A measure of subjective stress. Psychosomatic Medicine, 41, 209-219.

Kish, V., & Lansdown, R. (2000). Meeting the psychosocial impact of facial disfigurement: Developing a clinical service for children and families. Clinical Child Psychology and Psychiatry, 5(4), 497-512.

Rozell-Shannon, L. (2008). Assessing Maternal Response to the Impact of Hemangiomas on the Family System. (Doctoral dissertation for PhD). Walden University.

Rozell-Shannon, L. (2007). Modification of the Stanford acute stress reaction questionnaire (SASRQ): Measuring stress from a hemangioma diagnosis. Submitted for publication.

Rumsey, N., & Harcourt, D. (2004). Body image and disfigurement: Issues and interventions. Body Image, 1(1), 83-97.

Shapiro, J. (1983). Family reactions and coping strategies in response to the physically ill or handicapped child: A review. Social Science & Medicine, 17(14), 913-931.